- Regain fitness
- Rebuild strength
- Restore active lifestyle.
My recovery from Guillain-Barre Syndrome, including messages of hope, encouragement and light.
Thursday, December 31, 2009
Regain, Rebuild, Restore
Saturday, December 26, 2009
Check out this stance!
Christmas Day, 2009
10 months since the onset of GBS. Look at those feet?! Just keepin' my balance, baby. You know, I did not realize I was doing that, or if I did, I thought my feet would not be in the photo. So, being pigeon toed does not mean that I should stand around all twisted up, but it might explain why a tired leg would resort to the above position.
All in all, lots of progress is happening...just very slowly. I estimate myself at 70-75% of my normal functioning (though significantly less if you count endurance). At the latest neurologist visit, he said to give it a good 12-18 months and see where we are and what residual effects linger.
As of now:
- No deep tendon reflexes (zero, zilch, nada).
- Still walking with a wider than normal gait (very cute-- not so much! but what can one do without those reflexes!).
- Able to walk a couple of miles on an easy going day without other demands.
- Spending time at work 2 or 3 times a week doing light duty RN stuff (sort nurse in triage, a couple of hours patient care here and there).
- Doing more cooking, cleaning, laundry and other regular chores (the family LOVES this!).
- A couple of hours rest is often enough to recharge after doing a little too much--better than a day or more!
We had a nice Christmas at home with the traditional scones and fruit soup for brunch in the morning after presents. I slept all afternoon after working the night before and staying up finishing wrapping (procrastinator that I am!), so life is getting back to normal. And I am happy.
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